***It’s been about a month since my last post. I haven’t really felt very good. On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***
***Part of the problem seems to be blood pressure related.***
Here are my ten last readings: 113/80, 116/77, 109/77, 115/75, 89/57, 98/64, 105/72, 102/64, 103/60, and 99/58.
Now some would look at these readings and say “Wow! What really good blood pressure you have!”. And if all things were right in my world, they would be correct. But let me put this in perspective. For thirty plus years I have suffered from essential hypertension and have taken daily blood pressure medication just to keep it under 140/90.
My “normal” blood pressure is high, and sometimes has been very high. These results are “abnormal” for me. And those really low readings are very symptomatic with near syncope (passing out).
During the first six months of this year (2014), my blood pressure was on a rollercoaster ride, both up and down, although mostly down. Then, about mid-year I started getting consistent high readings and this lasted until my heart attack in late October. Since then, my blood pressure readings have been in the range above. Probably related to the dysautonomia that was diagnosed with my paraneoplastic syndrome caused by Stage IV cancer (melanoma).
***I find myself sleeping 12-14 hours per day and not ever feeling like I’ve gotten any rest.***
By mid-morning I start to feel completely exhausted and by early afternoon it’s overwhelming and I have to lie down for an hour or two.
***My appetite is not normal although I eat more than I should in calorie count.***
I usually eat only two real meals a day. My breakfast which is almost always Greek yogurt, fresh berries and natural granola with coffee and water. Then, I either eat a relatively large lunch or only snack and eat a relatively large dinner. Quantity wise they are not large, but are calorie-high because I like meat and dessert. I have gotten away from several small meals that I did while losing weight.
***I try to keep hydrated because my primary care physician suspects that the low blood pressure may be coming from the fact that he thinks I become dehydrated easily.***
I do wake up most mornings covered in sweat. I don’t know if that fact is related to all this or not.
***When I do try to work physically on something or do any real exercise, I still get a little short of breath and afterwards my body makes me pay dearly. Not good.***
My “nerve” pain is worse as is my neuro-muscular pain. By night time, they are usually more than I can stand. The pain may be one reason I try to sleep a lot.
***I don’t know when or if I will re-start the IVIG treatments.***
They were doing some good and I think I was feeling my best in quite some time the day the heart attack struck. My cardiologist thinks that as long as I stay on blood thinners, it would be okay. I plan to talk at length with my neurologist at my appointment in December.
***To summarize, right now I feel worse than I have in a long time. I have not returned to what had become my “new normal”. I am in a lot of pain every day and the fatigue is overwhelming.***
We’ve got a holiday tomorrow (Thanksgiving), so I will put a smile on and I will press on because one thing I am not is a quitter. God has left me here for a purpose, and I will do my best to fulfill it.