Author Archives: mcreyscope

About mcreyscope

Retired / disabled survivor of Stage IV melanoma and paraneoplastic syndrome. Now in a fight with terminal treatment resistant Stage IV Prostate Cancer.

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

Open Letter to Pain and Its Friends

Dear Pain, Fatigue and Weakness, I’m just writing to tell you that you’ll never, ever win. I will never stop fighting. You’ve hit me over and over with your best shot, but I keep getting up and living my life. … Continue reading

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It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Now just a minute, what is this thing called pain?

There are all kinds of different types of pain. One kind is the pain we feel when we touch something that is too hot, too cold or too sharp.  This kind of pain exists to try to protect us by … Continue reading

Posted in Chronic Pain and Chronic Illness, Inspirational | Tagged , , , , , , , , , , , , , , | 2 Comments

Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

Posted in Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Top Facebook Posts in December 2014 for McReyscope’s Musings on Chronic Illness

***Most of my time this month has had to be devoted to my Facebook page.  It was all I could do to keep up with it.  Once I did the very basics and what I had to do to keep … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , | Leave a comment

Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , , , , , , | 3 Comments

Baked Oatmeal

When we visiting Minnesota and the Mayo Clinic back in the early Summer, we purchased a great Amish cookbook from the Yoder family.  My wife adapted one of the recipes which we enjoy very much so I thought I would … Continue reading

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10 Common Mistakes Made In Chronic Illness

1.  Letting your disease control your life. As long as we allow our disease to control our lives, we really don’t have a life.  It’s not easy.  In fact, it is very, very hard to do.  But we have to … Continue reading

Posted in Chronic Pain and Chronic Illness, Inspirational | Tagged , , , , , , , , , , , , , | 3 Comments