Category Archives: IVIG

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

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Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , , , , , , | 3 Comments

Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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My First Dose of IVIG in August 2014

Two weeks ago, I received my first dose of IVIG in order to try to treat the paraneoplastic neurological syndrome triggered by Stage IV melanoma that has caused me significant health problems including: painful peripheral neuropathy in the hands and feet, … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , | Leave a comment