Category Archives: Paraneoplastic Syndrome

Finding New Strength – Cancer Sucks

It’s been sometime sine I wrote a new post.  The reasons are numerous.  A lot has to do with health issues and the continuing struggle I am fighting with chronic disease. Many of you may have read older posts describing … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, Heart Disease, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , | 1 Comment

It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

Posted in Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , | Leave a comment

Invisible Illness Week: 30 Things About My Invisible Illness You May Not Know

Today (Sept. 14) is the last day of Invisible Illness Awareness Week.  One of the things you can participate in is a meme at http://www.invisibleillnessweek.com about your own invisible illness.  This is my submission in support of advocating for the millions … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

One Week: A Snapshot of Chronic Illness and its Impact

The past week has been chock full of events, ups and downs, that relate to my life with chronic illness.  So, I thought that writing about it would be a good next step for my blog. For those who have … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

I Should’ve Known Better, But It Was Fun!

Last night, my son took me to the UT football game.  It was my first time going to the game using my power wheelchair.   Things started great.  We park in a garage that’s not too far from the stadium.  But … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

My First Dose of IVIG in August 2014

Two weeks ago, I received my first dose of IVIG in order to try to treat the paraneoplastic neurological syndrome triggered by Stage IV melanoma that has caused me significant health problems including: painful peripheral neuropathy in the hands and feet, … Continue reading

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