Tag Archives: autoimmune disease

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

Open Letter to Pain and Its Friends

Dear Pain, Fatigue and Weakness, I’m just writing to tell you that you’ll never, ever win. I will never stop fighting. You’ve hit me over and over with your best shot, but I keep getting up and living my life. … Continue reading

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Now just a minute, what is this thing called pain?

There are all kinds of different types of pain. One kind is the pain we feel when we touch something that is too hot, too cold or too sharp.  This kind of pain exists to try to protect us by … Continue reading

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Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , | Leave a comment

10 Common Mistakes Made In Chronic Illness

1.  Letting your disease control your life. As long as we allow our disease to control our lives, we really don’t have a life.  It’s not easy.  In fact, it is very, very hard to do.  But we have to … Continue reading

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Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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The Link Between Inflammation and Chronic Illness with Answers

***A chronic illness may be defined as a long-lasting condition that can be controlled but not cured.***  Chronic illness impacts people all over the world. The Centers for Disease Control (CDC) reports that chronic disease is the leading cause of death … Continue reading

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Invisible Illness Week: 30 Things About My Invisible Illness You May Not Know

Today (Sept. 14) is the last day of Invisible Illness Awareness Week.  One of the things you can participate in is a meme at http://www.invisibleillnessweek.com about your own invisible illness.  This is my submission in support of advocating for the millions … Continue reading

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