Tag Archives: chronic fatigue

Happiness and Joy Despite Chronic Illness

I’ve concentrated on other parts of my life the past few months, relying on the 80+ other posts that I’ve written to keep communicating my message with my Facebook followers.  As those of you who have read my blog know, … Continue reading

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Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

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Open Letter to Pain and Its Friends

Dear Pain, Fatigue and Weakness, I’m just writing to tell you that you’ll never, ever win. I will never stop fighting. You’ve hit me over and over with your best shot, but I keep getting up and living my life. … Continue reading

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Now just a minute, what is this thing called pain?

There are all kinds of different types of pain. One kind is the pain we feel when we touch something that is too hot, too cold or too sharp.  This kind of pain exists to try to protect us by … Continue reading

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Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

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10 Common Mistakes Made In Chronic Illness

1.  Letting your disease control your life. As long as we allow our disease to control our lives, we really don’t have a life.  It’s not easy.  In fact, it is very, very hard to do.  But we have to … Continue reading

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Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

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How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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Brain fog: what is it and what can we do about it?

***Brain fog, a type of cognitive dysfunction, is one of the most common complaints of people with chronic illness.*** It can be severe and can have just as big an impact on our lives as pain or fatigue. Sometimes, I … Continue reading

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