Tag Archives: chronic illness

Why does it hurt more at night?

I think many of us have asked this question: Why does it seem to hurt so much more at night? Now I’m also certain that a few will respond that it hurts more during the day, or after strenuous activity … Continue reading

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Happiness and Joy Despite Chronic Illness

I’ve concentrated on other parts of my life the past few months, relying on the 80+ other posts that I’ve written to keep communicating my message with my Facebook followers.  As those of you who have read my blog know, … Continue reading

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Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

Open Letter to Pain and Its Friends

Dear Pain, Fatigue and Weakness, I’m just writing to tell you that you’ll never, ever win. I will never stop fighting. You’ve hit me over and over with your best shot, but I keep getting up and living my life. … Continue reading

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It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Now just a minute, what is this thing called pain?

There are all kinds of different types of pain. One kind is the pain we feel when we touch something that is too hot, too cold or too sharp.  This kind of pain exists to try to protect us by … Continue reading

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Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

Posted in Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Top Facebook Posts in December 2014 for McReyscope’s Musings on Chronic Illness

***Most of my time this month has had to be devoted to my Facebook page.  It was all I could do to keep up with it.  Once I did the very basics and what I had to do to keep … Continue reading

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Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , , , , , , | 3 Comments

10 Common Mistakes Made In Chronic Illness

1.  Letting your disease control your life. As long as we allow our disease to control our lives, we really don’t have a life.  It’s not easy.  In fact, it is very, very hard to do.  But we have to … Continue reading

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