Tag Archives: cyclophosphamide

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , | Leave a comment

One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

One Week: A Snapshot of Chronic Illness and its Impact

The past week has been chock full of events, ups and downs, that relate to my life with chronic illness.  So, I thought that writing about it would be a good next step for my blog. For those who have … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Post Mayo: Waiting for the next stage of treatment

I have been back from my visit to Minnesota and a consultation at the Mayo Clinic for a little over three weeks.  My home neurologist is working on the necessary approvals to execute the treatment plan using IVIG that was … Continue reading

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My Experience With Cyclophosphamide (Cytoxan)

I have a paraneoplastic neurological syndrome.  What is that?  It is a process whereby the body’s immune system starts fighting the central nervous system in response to having had cancer, having cancer or having a developing cancer.  It is a … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , | 2 Comments

What is paraneoplastic syndrome?

Before I go into the next phase of my journey fighting melanoma, I think I should write a little bit about paraneoplastic syndromes.  As I found out during my hospitalization in October 2010, much of what I was dealing with … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , | 4 Comments