Tag Archives: Cytoxan

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, IVIG | Tagged , , , , , , , , , , , , , | Leave a comment

It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

The Link Between Inflammation and Chronic Illness with Answers

***A chronic illness may be defined as a long-lasting condition that can be controlled but not cured.***  Chronic illness impacts people all over the world. The Centers for Disease Control (CDC) reports that chronic disease is the leading cause of death … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

One Week: A Snapshot of Chronic Illness and its Impact

The past week has been chock full of events, ups and downs, that relate to my life with chronic illness.  So, I thought that writing about it would be a good next step for my blog. For those who have … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Post Mayo: Waiting for the next stage of treatment

I have been back from my visit to Minnesota and a consultation at the Mayo Clinic for a little over three weeks.  My home neurologist is working on the necessary approvals to execute the treatment plan using IVIG that was … Continue reading

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My Visit to Mayo in 2014

It’s hard for me to believe that it’s been three years since I last came to the Mayo Clinic for a consultation.  I was here twice in 2011 and ended up with a treatment plan that included taking Cytoxan, starting … Continue reading

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Made It To Mayo

Well, I thought I would write a few words to provide an update on my trip to the Mayo Clinic.  We arrived in Rochester Wednesday evening, came to the hotel, ate at Mac’s and settled in for the night. On … Continue reading

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My Experience With Cyclophosphamide (Cytoxan)

I have a paraneoplastic neurological syndrome.  What is that?  It is a process whereby the body’s immune system starts fighting the central nervous system in response to having had cancer, having cancer or having a developing cancer.  It is a … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Cytoxan Therapy, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , | 2 Comments

What is paraneoplastic syndrome?

Before I go into the next phase of my journey fighting melanoma, I think I should write a little bit about paraneoplastic syndromes.  As I found out during my hospitalization in October 2010, much of what I was dealing with … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , | 4 Comments