Tag Archives: IVIG

Insights on coping with my journey with chronic disease

Once again it’s been a while since my last post on this blog.  It wasn’t intentional.  My disease simply would not allow me the good moments that I needed to write.  I could post to Facebook and do a few … Continue reading

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Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

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Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

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Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , | 2 Comments

How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

The past week has been chock full of events, ups and downs, that relate to my life with chronic illness.  So, I thought that writing about it would be a good next step for my blog. For those who have … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , | 3 Comments

Post Mayo: Waiting for the next stage of treatment

I have been back from my visit to Minnesota and a consultation at the Mayo Clinic for a little over three weeks.  My home neurologist is working on the necessary approvals to execute the treatment plan using IVIG that was … Continue reading

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Made It To Mayo

Well, I thought I would write a few words to provide an update on my trip to the Mayo Clinic.  We arrived in Rochester Wednesday evening, came to the hotel, ate at Mac’s and settled in for the night. On … Continue reading

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