Tag Archives: Mayo Clinic

It Just Keeps Coming

I thought it was time to write a blog about what has been going on with my chronic illness.  As those who have read my blog know, I suffer from a paraneoplastic neurological syndrome that was triggered by Stage IV … Continue reading

Posted in About Melanoma, Chronic Pain and Chronic Illness, Heart Disease, IVIG, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments

Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

Posted in Chronic Pain and Chronic Illness, Heart Disease, IVIG | Tagged , , , , , , , , , , , , , , , , , , , | 3 Comments

Baked Oatmeal

When we visiting Minnesota and the Mayo Clinic back in the early Summer, we purchased a great Amish cookbook from the Yoder family.  My wife adapted one of the recipes which we enjoy very much so I thought I would … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

Posted in About Melanoma, Chronic Pain and Chronic Illness, Inspirational, Paraneoplastic Syndrome | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

Post Mayo: Waiting for the next stage of treatment

I have been back from my visit to Minnesota and a consultation at the Mayo Clinic for a little over three weeks.  My home neurologist is working on the necessary approvals to execute the treatment plan using IVIG that was … Continue reading

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Thoughts about downtown Rochester Minnesota and surrounding area

I think I promised that I would write something about my experiences in Rochester while at the Mayo Clinic.  Let me start with the food.  There are a lot of great restaurants to choose from.  Here are a few highlights. … Continue reading

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My Visit to Mayo in 2014

It’s hard for me to believe that it’s been three years since I last came to the Mayo Clinic for a consultation.  I was here twice in 2011 and ended up with a treatment plan that included taking Cytoxan, starting … Continue reading

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Fathers’ Day in Minnesota

I spent Fathers’ Day here in Rochester, Minnesota.  I have a really bad cold so I didn’t feel like doing a lot but Cindy and Rachel made it a special day for me.  As soon as I was up and … Continue reading

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Made It To Mayo

Well, I thought I would write a few words to provide an update on my trip to the Mayo Clinic.  We arrived in Rochester Wednesday evening, came to the hotel, ate at Mac’s and settled in for the night. On … Continue reading

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We’re off to see the wizards!

It’s almost time.  Back to the world renowned Mayo Clinic to see if the wizards of medicine have any new insight to offer to try to slow down the progression of my paraneoplastic syndrome.  It’s hard to imagine that it has been three … Continue reading

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