Tag Archives: neurological disorders

Tips on how to survive physical rehabilitation with a chronic debilitating disease

***With this post I want to try to do two things: (1)  Pick up the story where I left off of my struggle with melanoma and paraneoplastic syndrome in early 2011, and (2)  Provide some tips about how to deal … Continue reading

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RARE DISEASE DAY 2014!

FEBRUARY 28, 2014 IS RARE DISEASE DAY!! “The USA joined Rare Disease Day in 2009 with participation from NORD, the National Organization for Rare Disorders, making the campaign a truly international affair. Diverse events and campaigns have been organized since … Continue reading

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