Tag Archives: paraneoplastic neurological syndromes

Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

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Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

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10 Common Mistakes Made In Chronic Illness

1.  Letting your disease control your life. As long as we allow our disease to control our lives, we really don’t have a life.  It’s not easy.  In fact, it is very, very hard to do.  But we have to … Continue reading

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Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

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How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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The Link Between Inflammation and Chronic Illness with Answers

***A chronic illness may be defined as a long-lasting condition that can be controlled but not cured.***  Chronic illness impacts people all over the world. The Centers for Disease Control (CDC) reports that chronic disease is the leading cause of death … Continue reading

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My First Dose of IVIG in August 2014

Two weeks ago, I received my first dose of IVIG in order to try to treat the paraneoplastic neurological syndrome triggered by Stage IV melanoma that has caused me significant health problems including: painful peripheral neuropathy in the hands and feet, … Continue reading

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October 2010: The Beginning of the Real Fight

In my last post, I described how good I felt in July 2010 during a family vacation in Kentucky. ***Little did I know at this point in time that this was likely to be my high water mark – sort of … Continue reading

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What is paraneoplastic syndrome?

Before I go into the next phase of my journey fighting melanoma, I think I should write a little bit about paraneoplastic syndromes.  As I found out during my hospitalization in October 2010, much of what I was dealing with … Continue reading

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