Tag Archives: paraneoplastic syndrome

Now just a minute, what is this thing called pain?

There are all kinds of different types of pain. One kind is the pain we feel when we touch something that is too hot, too cold or too sharp.  This kind of pain exists to try to protect us by … Continue reading

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Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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Trying to Get Back to the “New Normal”: Post Heart Attack Musings

***It’s been about a month since my last post.  I haven’t really felt very good.  On some days, I’ve done a lot, but the fatigue has put me down for a couple of days thereafter.***  ***Part of the problem seems … Continue reading

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Heart Attack! A reminder of my fragile mortality!

It was Monday, October 27, 2014.  I woke up feeling “pretty good”.  At least good for me given my chronic illness and the various symptoms that I live through each day.  The week before I had started a new protocol … Continue reading

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Third Dose of IVIG

Well, I had my third dose of IVIG this week.  For those who may not have read previous posts, I take IVIG to treat peripheral neuropathies, pain and fatigue along with many other symptoms that are part of a paraneoplastic … Continue reading

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How IVIG treatment is going

Today I thought I would write an update on how my IVIG treatment is going.  The graphic above is a good description of the past week or so.  I have felt pain so terrible that it almost doubles me over.  … Continue reading

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The Link Between Inflammation and Chronic Illness with Answers

***A chronic illness may be defined as a long-lasting condition that can be controlled but not cured.***  Chronic illness impacts people all over the world. The Centers for Disease Control (CDC) reports that chronic disease is the leading cause of death … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

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Post Mayo: Waiting for the next stage of treatment

I have been back from my visit to Minnesota and a consultation at the Mayo Clinic for a little over three weeks.  My home neurologist is working on the necessary approvals to execute the treatment plan using IVIG that was … Continue reading

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My Visit to Mayo in 2014

It’s hard for me to believe that it’s been three years since I last came to the Mayo Clinic for a consultation.  I was here twice in 2011 and ended up with a treatment plan that included taking Cytoxan, starting … Continue reading

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