Tag Archives: transverse myelitis

Building Awareness: What All Chronic Pain Sufferers Have In Common

Today, about two months and two weeks after my heart attack, I went back to continue the high dose IVIG (intravenous immunoglobulin G) treatments that were recommended by the doctors at the Mayo Clinic last summer. I am just back … Continue reading

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One Week: A Snapshot of Chronic Illness and its Impact

One Week: A Snapshot of Chronic Illness and its Impact.

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One Week: A Snapshot of Chronic Illness and its Impact

The past week has been chock full of events, ups and downs, that relate to my life with chronic illness.  So, I thought that writing about it would be a good next step for my blog. For those who have … Continue reading

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My Visit to Mayo in 2014

It’s hard for me to believe that it’s been three years since I last came to the Mayo Clinic for a consultation.  I was here twice in 2011 and ended up with a treatment plan that included taking Cytoxan, starting … Continue reading

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My Experience With Cyclophosphamide (Cytoxan)

I have a paraneoplastic neurological syndrome.  What is that?  It is a process whereby the body’s immune system starts fighting the central nervous system in response to having had cancer, having cancer or having a developing cancer.  It is a … Continue reading

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A Report on Today’s Condition

It has been a while since my last post, so I wanted to take a little time to update how I’m feeling and how things are progressing.  The past month has been difficult.  Not only have I had to overcome … Continue reading

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5 Survival Strategies for Chronic Pain and Chronic Fatigue

1.  Stick to a routine. Personally, I think this one is the most important.  And, it is vital to your success.  What I mean by “stick to a routine” is pretty simple. Get up at the same time each day … Continue reading

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Tips on how to survive physical rehabilitation with a chronic debilitating disease

***With this post I want to try to do two things: (1)  Pick up the story where I left off of my struggle with melanoma and paraneoplastic syndrome in early 2011, and (2)  Provide some tips about how to deal … Continue reading

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RARE DISEASE DAY 2014!

FEBRUARY 28, 2014 IS RARE DISEASE DAY!! “The USA joined Rare Disease Day in 2009 with participation from NORD, the National Organization for Rare Disorders, making the campaign a truly international affair. Diverse events and campaigns have been organized since … Continue reading

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My home as a refuge from my chronic disease

I thought for this post I would talk a little bit about how I make the most of my world at home. ***This is where I spend almost all my time although I do get out on the occasional errand, … Continue reading

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